Good Night Lights!

There has been a growing movement to bring cheer to sick kids at hospitals.  Not just during the Christmas season, but all year round.

It’s called Good Night Lights.

Picture this.  At 8:30 every night, the city stops and blinks its lights for a minute to say goodnight to the sick kids in childrens’ hospitals. The kids are given flash lights to blink back.  Restaurants and boats participate.  Skyscrapers and police cruisers.  They all blink their lights for a minute to say goodnight.

A few months ago I shared with you the story of the University of Iowa Hawkeyes, how between the 1st and second quarter of their football game, the fans all stand and turn around and wave to the kids in the UI Children’s Hospital.  It’s amazing.  You would think a small thing like that wouldn’t be such a big deal, but the kids LOVE IT.  Their parents LOVE it. Even the staff LOVES it.  Why you may ask?  Hospitals aren’t great places for kids.  They are there because they are sick and sore.  There is very little to look forward to.  This is something special.

That’s just during football season, though.  How many games?  Eight?

Imagine having one thing to look forward to every night, a way to cap off the day and welcome the evening?  And it’s super easy.

I first heard about Providence, Rhode Island, and their Good Night Lights Program on the radio, and I looked it up. Boats and hotels and even restaurants blink their lights to the kids that are sick at the Hasbro Children’s Hospital. You can read about it here.

It has become so popular that it has spread to Orlando, where the city blinks its lights to the Arnold Palmer Children’s hospital.  You can read about that too, right here.

It’s also a thing at Beaumont Children’s Hospital in Detroit.

I want to do this for Boston!

But Boston has specific problems that need to be overcome.  It has a number of childrens’ hospitals.  There’s Tuft’s Floating Hospital.  There’s Mass General Hospital for Children and there’s Boston Children’s Hospital.

pediatric hospitals boston map

How do we triangulate efforts to make this work?

How spectacular would this be if we COULD make this work?

Let’s brainstorm this.

Please leave me a message if you have ideas!

 

 

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Review: “Miracles from Heaven”

Confession:  I dreaded going to this movie, and I thought I was going to hate it.  Maybe I wanted to hate it, but that was just a product of my own fear.  It was impossible to hate it.  Be warned, there will be spoilers in this review, but if you’ve seen the trailer, then you already know everything there is to know about it.  If you would like to see the trailer, here is the link.

The plot is as follows:  The Beam family are a normal, everyday, God-fearing, southern family.  You like them almost immediately.  Their middle child Annabel comes down with a mysterious, incurable chronic illness that is both difficult and painful.  They go to multiple doctors to get answers, and get nowhere for a really long time.  It tests their marriage and their financial security as well as their faith.  Finally, they find a doctor at Boston Children’s Hospital who can’t cure their daughter, but can give them hope both with his knowledge and his bedside manner.  After multiple trips back and forth from home to Boston,and  lengthy hospital stays, Annabel is still in terrible pain and not much more can be done for her, so they send her home. While she is home her older sister talks her into climbing a big dead tree with her on their property, and when the branch they are sitting on is about to give way, Annabell jumps to a hole in the tree, falls through the trunk all the way down thirty feet, and is unconscious.   Rescue teams recover her and she turns out to be fine.  Better than fine.  She turns out to be cured of her terminal illness.  She tells her parents while she was unconscious that she had an out-of-body experience, met God, and he told her that she was going to have to go back, that she was healed.  The doctors can’t explain it, she is asymptomatic and does not require medication.  It’s a miracle.

There are subplots that I don’t love, like when the good meaning church ladies come to the mother Christy and ask if it was her sin or the sin of her daughter is what is keeping her daughter from getting healed by God.  This causes Christy to stop going to church, and is in fact the exact opposite of what a church community, or any good community is supposed to do:  they are supposed to support each other during the hard times, and what could be harder than having a child with an indescribable, incurable illness?  Casting judgement about a person’s spiritual guilt is a beyond petty, it is downright cruel.

But some parts are right on.  Seeing both the pain of the child, and the pain of the parents was very real.  There was one part where the parent was asked to hold down the child so that the nurse could perform an uncomfortable procedure.  I can’t tell you the amount of times Michael and I had to hold Wendy down for blood draws and IVs, participating in the needed trauma that had to happen.  Also the part about the parents being frustrated with not being able to get answers, and being stopped by hospital policy.  I’ve addressed this in my blog post Courteous Vs. Helpful, where hospital staff can be advocates for the parent or just polite.  Compassion of the staff make all the difference.

Another part that was real was how a child’s illness effects everyone.  The child, of course, to whom these horrible things are happening, but also the rest of the family, their friends, their community.  Everyone gives something up.  In the movie, the father had to sell his motorcycle to pay bills. The older sister misses her tryouts for a soccer team.  They all give up pizza because Annabel can’t eat it.  Annabel’s medicine schedule, on a whiteboard calendar, sits front and center in the dining room, a constant reminder that their lives are not the same, but they stick together and they tough it out because that’s what families do:  they support each other, they love each other.

The most powerful message, however, comes at the end, once Annabel is healed and they return to church.  Christy delivers the sermon, and though she is grateful for the miraculous healing of her daughter, she tells the congregation that miracles are everywhere.  This is the important part.  Miracles are the actions that others perform to support the people in need.  The neighbor who watches the kids.  The waitress who befriends them while they are in Boston. The receptionist who fits them in to the schedule.  The doctor who gives them hope.

This is what I can’t stress enough, because when Wendy was at her sickest, we had a whole network of people both seen and unseen who helped us.  Whether it was taking care of our house, watering our plants, feeding our cats, offering us places to stay, sending us gifts, bringing us Thanksgiving dinner, praying for us, helping us to move, calling to check in, offering up their sick days, taking the time to come up to Boston and help, all of these things are  miracles worth celebrating.  Never underestimate what your small effort can do to help a person.

The name of the movie really should be “Miracles are Everywhere.”

Ultimately, the real shame is that Christy Beam realized it once her daughter was healed, and not before.

Bring tissues if you go to see it, and let me know what you think.

Here is a link to the real Beam family, from People Magazine.